Personal Data
Details
Location: hack cinema 1
Date & Time: Tue 18:00
Target Group: anyone interested in protecting personal data, or the use of synthetic data
Topic Stream: Transparency and Accountability
Session Etherpad page: http://okfestival.okfnpad.org/personal-data
Panel Discussion on Open Personal Data
Panelists: Zsuszanna Belenyessy, William Heath, Kai Kuikkaniemi Moderator: Reuben Binns
There is more personal data being collected now than ever before – energy use, health records, browsing habits. There is great potential for service users to make use of their own personal data sets. Many services already provide personal data download options (for example, the ‘Green/Blue Button’ initiatives, and Google’s ‘Data Liberation Front’). But there are currently no industry standards or best practice. This panel discussion would discuss the way forward for personal data access. How can we encourage and enable more service users to get copies of their personal data? What formats and licenses should apply? What are the potential benefits and risks? How does ‘open’ personal data fit in to the definition of open data as ‘non-personal’ information?
Sustainable Data Synthesis
Kai Kuikkaniemi
There is more personal data being collected now than ever before – energy use, health records, browsing habits. There is great potential for service users to make use of their own personal data sets. Many services already provide personal data download options (for example, the ‘Green/Blue Button’ initiatives, and Google’s ‘Data Liberation Front’). But there are currently no industry standards or best practice. This panel discussion would discuss the way forward for personal data access. How can we encourage and enable more service users to get copies of their personal data? What formats and licenses should apply? What are the potential benefits and risks? How does ‘open’ personal data fit in to the definition of open data as ‘non-personal’ information?
Session Host
Reuben Binns, @RDBinns
Reuben Binns is a postgraduate researcher in Web Science at the University of Southampton, with research interests in personal data, privacy, and IP.
Contributors
Kai Kuikkaniemi, Finland, @kaikuikkaniemi
Kai Kuikkaniemi is a researcher from Helsinki Institute for Information Technology. Kai has also been co-organising this session, and will be presenting his recent work on sustainable data synthesis, and will explore what a sustainable data synthesis organization might look like, with a brief exercise for attendees.
William Heath is an entrepreneur, currently co-founder of Mydex Community Interest Company which seeks to restore control over personal data to individuals and let individuals realise the value of their personal data. He also cofounded Kable Ltd and Ctrl-Shift Ltd, chaired Open Rights Group and is a Fellow of the Young Foundation. As a sideline he writes speeches for Sir Bonar Neville-Kingdom, a senior British civil servant viscerally opposed to all forms of openness. William lives with family in Bath, England where he is restoring a farm and learning baritone saxophone.
Zsuszanna Belenyessy is an international business and privacy lawyer, currently European Union civil servant, legal officer at the Secretariat of the European Data Protection Supervisor in Brussels. Zsuzsanna will provide a legal and policy perspective on personal data access, including the role of subject access request rights in getting personal data back to users, as well as data security, and what happens if the user chooses to publish the data online.